WP 1 – Patient-Centered Medicine

These 3 sub-actions will enhance the convenience for the patient, maintain professional oncological care and increase efficiency and cost-effectiveness in the Euregio, while guaranteeing the highest level of medical quality and promoting empowerment of our patients in very significant ways.

ACTION 1 – TELECONSULTING

Online conferences have often low audio / video quality and high-tech equipment and software are thus needed to offer patients and physicians access to the best advice on their case. Multidisciplinary discussions of diagnosis and treatment facilitate good practice in oncology, but complex cases or rare entities require skills not available in-house. There is a real need for a permanent structure to conduct this activity between institutions organized into networks. This will promote our inter-regional hematology (myeloproliferative neoplasms and stem cell transplantation) and oncology (malignant hepato-pancreatic-biliary tumors) programs for patients in Aachen, Liège and Maastricht, and cooperation with Hasselt. We would like to be pioneers of patient participation in some teleconferences as a means of empowerment. Data security has already been addressed by the anonymization tools in use at the Telemedicine Center in Aachen. Thus, the first action will:

  • Develop a teleconsulting platform as a high-tech multifaceted network of expertise,
  • Provide high-quality communication on patient data and images in efficient video meetings to facilitate clinical discussions and pathology counseling
  • Test patient participation

COOPERATION

ECCA has an existing and successfully operating center of telemedicine. This platform will be shared to exchange the clinical data between partners

ACTION 2 – PROM

There is a momentum to organize health care in networks and to promote transparency on outcomes, providing “added value for the patient”. Parameters for assessing quality of care should therefore include « Patient-Reported Outcome Measurement » (PROM), a direct measure of added value for the patient rarely evaluated in clinical practice. We will pursue this objective in 3 steps:

  • The creation of a CTC-PROM application compatible with any SPS (« Smart Patient Support » such as smartphone, iPhone, Android …) in a standardized and validated way by a specialized IT company to assess the real added value of treatments for patients.
  • The establishment, through collaboration between the IT company and the internal IT specialists, of a computer platform allowing a secure exchange between the SPS and the electronic medical file. This application will automatically transfer the result to the electronic patient record and/or a research database.
  • The Study of the impact of therapeutic decisions on PROM in 2 selected representative malignant tumors. We will analyze the potential advantages and disadvantages as experienced by the patient.

  COOPERATION

The application will be programmed in CHU de Liège and then transferred to and used by other centers.

ACTION 3 – HOME HOSPITALIZATION

Health authorities seek to limit the use of expensive hospital resources. Oncology has greatly developed the concept of outpatient hospital care in daycare hospitals (small operations, endoscopy, chemotherapy, transfusions …). Administering some of this specialized care at home by hospital and partnering personnel would considerably increase patient comfort, improved bed availability and reduce costs for hospitals and insurances. Thus, our ambition is

  • To develop the new concept of hospitalization at home (HAD) into a network of hospital professionals and ambulatory nurses, with 2 objectives:
    • Some hospitalized acute patients could return home after initial stabilization in hospital, with specialized treatment continued at home. This includes also home preparation before surgery to speed up postoperative recovery.
    • Provide specialized care in oncology (certain chemotherapies, antibiotics, growth factors, hydration, nutrition …) at home.
  • To validate this approach by ensuring feasibility and safety, establishing criteria for selecting patients, preparing medical and organizational procedures, training staff, and optimizing costs and routes.

COOPERATION

Strategies will be designed, tested and validated in CHU de Liège and then applied in all centers