T1. Patient-Centered Medicine
This action focuses on innovation and the strengthening of patient-centered medicine in the Meuse-Rhine Euregio. Thus, this axis aims at implementing tools for improving evidence-based yet personalized decision making, incorporating patient-reported outcome measurements, and bringing the hospital to the patients’ homes.
T1.1 – TELECONSULTING
Multidisciplinary discussions of diagnosis and treatment facilitate good practice in oncology, but complex cases or rare entities require skills not available in-house. There is a real need for a permanent structure to conduct this activity between institutions organized into networks. This will promote our inter-regional hematology and oncology programs for patients in UKA-CIO, CHU de Liège and MUMC+.
This first action will aim at developing a teleconsulting platform to get personalized advice and broad experiences with 2 parts:
- Clinical teleconsulting: Multidisciplinary oncological discussions on rare cancers / difficult cases
- Pathological teleconsulting: Pathology outsourcing to discuss difficult cases or get a second opinion
UKA-CIO has an existing and successfully operating center of telemedicine. It will enable partners to exchange high-resolution, high-throughput clinical data and microscopic images. This platform will be tested among UKA-CIO, CHU de Liège and MUMC+ and then, extended to non-academics.
T1.2 – PROM
There is a willingness to organize networks of care and to promote greater transparency on results: “what is the added value for the patient?”. The quality of care assessment should therefore include « Patient-Reported Outcome Measurement » (PROM), a direct measure of added value for the patient rarely evaluated in clinical practice.
The aim is to create an application to collect results reported by patients in a standardized and validated way with an automatic transfer to the electronic patient record. A study of the impact of therapeutic decisions on PROM in 2 selected representative malignant tumors will be conducted to analyze their potential advantages and disadvantages as experienced by the patient.
ULiège will develop the application with an IT company. The collaboration between this company and IT specialists of each institutions will be necessary for the communication with patients’ electronic medical records. ULiège, UKA-RWTH and MU will collaborate in the pilot studies with 2 types of cancer.
T1.3 – HOME HOSPITALIZATION
Health authorities seek to limit the use of expensive hospital resources. Oncology has greatly developed the concept of outpatient hospital care in daycare hospitals (small operations, endoscopy, chemotherapy, transfusions …). Administering some of this specialized care at home by hospital and collaborating personnel would considerably increase patient comfort, improved bed availability and reduce costs for hospitals and insurances. Thus, our ambition is to develop and validate the new concept of hospitalization at home (HAD) for medical treatment (chemotherapy, antibiotics, supportive care) and physical therapy.
CHU de Liège has conducted a pilot phase in 2015, leading to a second pilot study of 6 months. Once validated, the approach will be transferred to UKA-CIO and MUMC+ to be adapted to their national and local contexts.