WP 2 – Quality of care

These 2 actions aim at developing quality management (QM) and accreditation to pursue the goal of improving quality of care to advance patient health


(1) Registries, collecting data about diagnosis, treatment and outcome, are essential for epidemiology, monitoring of activity, planning of future needs and quality control (QC). QC and benchmarking pursue the goal of improving quality of care to advance patient health. However, the data collected are not the same because of the different structures of our national registers. Our aim is to harmonize data sets collected by each partner while maintaining exchangeability with our respective cancer register.

  • The different centers must agree on the type of data collected and the format used for entering information in a database.
  • Exchange of data in a secured way with pseudonymous data and in agreement with privacy laws and regulations.

(2) JESSA has an established QM program in place for the entire hospital and ECCA has a QM program in oncology.

  • Both institutions will help CHU and MUMC to develop their own QM system in oncology and to facilitate the certification. Cross-audits and interactions of quality teams will allow exchange of best practices and solutions and common definition of outcome indicators, allowing benchmarking, analyses and corrective actions.
  • A long-term plan for this action would be a joint certification by ESMO as the « Integrated Center for Oncology and Palliative Care » of the Meuse-Rhine Euregio. Such a cross-border certification promoting high-quality oncological care in the Euregio would be a real innovation.


  • Quality management (QM): Support provided by ECCA and Jessa to CHU and MUMC to develop their QM system (cross-audits, quality team interactions, indicator definition).
  • Cancer registries: Development by ECCA of a tool to secure exchange of anonymous and encrypted data in a common database and automatization of local data transfer on the exchange platform.


(1) Management of allogeneic HCT is a complex endeavor involving donors and donor centers, cell collection centers, cord blood and HSC banks and transplant centers. HCT implies pretransplant planning, donor and cell product management, transplant procedures and long-term follow-up. Different but overlapping data sets are collected for organizational, communicational and scientific purposes and patient data are entered repeatedly into electronic medical files, specialized local databases and (inter)national registries and reproduced on multiple paper forms. The challenge is to transform an inefficient and error-prone system into a unique IT tool satisfying all local needs and international and regulatory/quality requirements. This management software would be a ground-breaking development, enhancing QM of this activity to the benefit of patient.

  • CHU has internally developed the structural and functional characteristics of an extensive stand-alone IT tool to manage various aspects of HCT (i.e. data integration, automatic transmission of forms, electronic export to registries…).

(2) Obtaining accreditation of transplant activity by the Joint Accreditation Committee of ISCT and EBMT (JACIE) is associated with better outcomes (including overall survival) in patients. Jessa, CHU and MUMC have obtained the JACIE accreditation and our objective is to

  • Facilitate JACIE accreditation of ECCA by providing strong support for all preparation steps.


  • JACIE accreditation: Support provided by Jessa and CHU (JACIE accredited) to ECCA for its accreditation: transfer of quality system (care pathways, computer tools, and documentation), discussions between quality managers, audits, benchmarking.
  • HCT management software: Conceptualization of the characteristics of a complete HCT management software by CHU and transfer to ECCA and JESSA